Unendorsed Causes

Young Boy With Rare Disease by Jaime

“Battling Eosinophilic Esophagitis”

Hello my name is Riley. I am a 4 year old and I have Eosinophilic Esophagitis. I was diagnosed January of 2008. I want to share my story with everyone so people can understand more about Eosinophilic Disorders.

It all began in Cape Girardeau Missouri August 11th 2004. I was born,Barely weighing 6 pounds I had a few problems in the beginning. Overall my mother thought she had a healthy baby, until I ended up in and out of the hospital. I was always sick without much explanation. At one point the doctors thought I needed surgery on the muscle opening to my stomach, since it wasn't allowing the food to go through properly. After visiting Children's Hospital in St.Louis for a few days, they decided the condition was border line. Thank god no Operation was needed. But my mother worried as I continued to have health problems. Just this year in January 2008 I was diagnosed with a rare illness called Eosinophilic Esophagitis. This went misdiagnosed for 3yrs of my life. Currently there is no cure for this illness and not many doctors know about it. Trying to get medical treatment has been very difficult. The worst part is when the doctors can't even answer our questions. Currently the illness is in my Esophagus, but it can be else where in my body.

My mother has now learned that the best treatment for me is in Cincinnati. They have a treatment center just for Eosinophilic Disorders. She is currently working on the paper work to get an appointment. She can not wait to get me the best treatment possible.

As of today we are without a home. We began staying in a shelter in August 2008 right after my 4th Birthday. My mother was hospitalized twice in September 2008. As of right now we are currently seperated until my mother can get back on her feet. She has been strong for me these past 4 years and I can't wait to be with her again! I have never been away from my mother this long.

If in any way you can help that would be a blessing. My mother is currently unable to work and she desperately needs your help. She needs money to send where I am temporally staying so I can go to pre-school and have food to eat. We are close to having our car taken away since she has been unable to pay the monthly payment. We need our car to get back and forth from the Hospitals that are near and far. As soon as she gets a place for us to live and enough money for the plane tickets I can come back home. I miss my mommy so much and can't wait to see her! She is the best mommy in the world!

Thanks for taking the time to read our story.

Love,
Riley

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